top of page

Privacy Policy

A legal disclaimer

Last updated: December 2025
Thank you for visiting our website. We are committed to protecting the privacy and confidentiality of all individuals and families in the Prader–Willi syndrome (PWS) community. This Privacy Policy explains how we collect, use, store, and protect your information when you visit our site or use our services.
1. Information We Collect
We may collect the following types of information:
a. Personal Information (Provided by You)

  • Name

  • Email address

  • Phone number

  • Any information you voluntarily share through contact forms or support requests

b. Non-Personal Information (Automatically Collected)

  • Browser type

  • Device information

  • Pages visited on our website

  • General website usage statistics

This information helps us improve the website and user experience.
2. How We Use Your Information
We use your information only for purposes related to support, communication, and community services. This may include:

  • Responding to messages or support requests

  • Sharing PWS resources or updates

  • Improving our website and services

  • Enhancing accessibility and user experience

We do not sell, rent, or trade your personal information.
3. How We Protect Your Information
We take the privacy of families seriously. We use appropriate technical and organizational measures to safeguard your information, including:

  • Secure servers and encrypted connections

  • Limited access to personal data

  • Internal confidentiality standards

However, no online system can guarantee 100% security.
4. Sharing Your Information
Your information may be shared only when necessary, such as:

  • With trusted professionals (e.g., medical experts) only if you request support

  • To comply with legal obligations, if required

  • With service providers who help maintain the website (they do not have permission to use your data for any other purpose)

We never share your information for marketing or commercial use.
5. Cookies and Tracking Technologies
Our website may use cookies to:

  • Improve functionality and user experience

  • Analyze website traffic

  • Remember user preferences

You can disable cookies in your browser at any time.
6. Your Rights
Depending on your location, you may have the right to:

  • Access the information we hold about you

  • Request corrections or updates

  • Ask us to delete your personal data

  • Opt out of any newsletter or email communications

To request any of these actions, contact us at: (add email)
7. Children’s Privacy
We are committed to protecting the privacy of children.
Our website does not collect personal information from children unless a parent or guardian provides it knowingly.
8. Links to Other Websites
Our website may contain links to external resources.
We are not responsible for the privacy practices of other websites. We encourage you to review their privacy policies.
9. Updates to This Policy
We may update this Privacy Policy from time to time. Any changes will be posted on this page with a new “Last updated” date.
10. Contact Us
If you have any questions about this Privacy Policy or how your information is handled, please contact us:

Email: info@pwsegypt.com 

WhatsApp: +20 150 8649692

bottom of page